In the ongoing debate about the Transforming Care programme
in England, a distinction is often made between inpatient services described as
Assessment and Treatment Units (ATUs) and inpatient services variously
described as secure and/or forensic. The argument sometimes follows from this
that Transforming Care should be focused on reducing/closing the number of ATU
places (largely commissioned by CCGs), because secure/forensic inpatient
services (largely commissioned by NHS England specialist commissioning teams)
are always going to be needed for some people with learning disabilities and/or
autism. Personally, I’m not sure such a sharp distinction is possible,
desirable, represents reality, or necessarily means that we need the amount of
secure/forensic inpatient services that exists today.
In this blogpost I want to describe the range of inpatient
services that exist, using Assuring Transformation data collated and analysed
by NHS Digital. The Assuring Transformation dataset presents ongoing monthly information about inpatient services for people with learning disabilities and/or autism, collected from health service commissioners. While I think it
under-represents the total number of people with learning disabilities and/or
autism using inpatient services (see here for why), it does contain a lot of
valuable detail about inpatient services and the people within them. As well as
describing these services, I’m also interested in any clues we can find to
support the distinction between ATUs and secure/forensic services.
The first graph below shows the number of people with
learning disabilities and/or autism in different types of inpatient service (as
labelled in the Assuring Transformation dataset), for March 2015, December
2015, May 2016 and November 2016. In November 2016, the most common type of
inpatient service was ‘secure forensic’, containing (a word I use advisedly) around
half of all people within the Assuring Transformation dataset (1,725 people,
50.6%). ‘Acute learning disability’ services (in effect ATUs) contained 460
people (18.3%), followed by complex care/rehabilitation services (330 people;
13.1%). ‘Forensic rehabilitation’ services weighed in with 120 people (4.8%),
155 people (6.2%) were in ‘acute generic mental illness’ inpatient services,
and a further 180 people (7.1%) were in inpatient services described as ‘other
specialist’ or ‘other’. The extent to which some of these esoteric distinctions
between service types is meaningful, particularly to the people placed within
them, is a question there to be asked, I think.
While the overall trend is pretty flat, from March 2015 to
November 2016 it looks like there are some trends over time for some specific types
of inpatient service. The use of acute generic mental illness, complex
care/rehabilitation, and other inpatient services seems to be increasing, while
the use of forensic rehabilitation and other specialist inpatient services
seems to be decreasing. Trends for the most common types of inpatient service
over time, secure forensic and acute learning disability, are unclear.
Another way of looking at the nature of inpatient services
is to look at the security level of the places where people with learning
disabilities and/or autism are put, as in the graph below. In November 2016,
nearly half of people (1,195 people; 47.3%) in inpatient services were in
‘general’ (i.e. not secure) inpatient services, and a small number of people
(50 people; 2.0%) were in PICUs (Psychiatric Intensive Care Units, which are
secure). Well over another quarter of people (740 people; 29.3%) were in low
secure services, 475 people (18.8%) were in medium secure units, and another
relatively small number of people (65 people; 2.6%) were in high secure
services.
Over the relatively short period of time reported in these
statistics, the number of people in low secure services seemed to be
decreasing, while the number of people in general (not secure) and medium
secure services seemed to be increasing.
The next graph below shows the legal status of people with
learning disabilities and/or autism in inpatient services. In November 2016, 250
people (9.9%) were in inpatient services ‘informally’, i.e. not legally
detained under Section according to the Mental Health Act (MHA). Around half of
people (1,720 people; 50.4%) were detained under Part II of the Mental Health
Act (compulsory admission to hospital, usually for assessment and/or treatment).
A further 355 people (14.1%) were detained under the more serious Part III of
the Mental Health Act (but without restrictions imposed by the Ministry of
Justice), and almost a quarter of people (595 people; 23.6%) were detained
under Part III of the Mental Health Act with restrictions imposed by the
Ministry of Justice. Part III of the Mental Health Act involves ‘patients
concerned in criminal proceedings or under sentence’. Finally, a small number
of people (50 people; 2.0%) were detained using other parts of the Mental
Health Act.
Over time, the number of people ‘informally’ in inpatient
services has decreased, while patterns for people legally detained under
various sections of the Mental Health Act over time are unclear.
The Assuring Transformation data analysis offers a couple of
hints. The first is in the graph below, which shows for November 2016 the legal
status of people within inpatient services at different levels of security. If
more secure/forensic services are doing the job claimed for them, we would
expect most people within them to be under Part III sections. We would also
expect general/low secure inpatient services not to have people under Part III
sections (particularly those with Ministry of Justice restrictions), as
services at this level of security shouldn’t be able to manage people with these
apparent levels of ‘risk’.
The graph below does show that medium and high secure
services do largely contain people sectioned under Part II and Part III of the
Mental Health Act. Low secure units have a similar profile to more secure
units, although the numbers of people in low secure units are greater overall
(there are as many people in low secure units under Part III sections with restrictions
as there are in medium and high secure units combined). Even general inpatient
units, while weighted more towards people there ‘informally’ or with Part II
sections, still contain substantial numbers of people with Part III sections,
both without restrictions (80 people) and with restrictions (120 people).
This information certainly shows that most people under Part
III sections are in general/low secure services (600 people) rather than
medium/high secure services (350 people). Is this because there aren’t enough
medium/high secure inpatient services and they are desperately needed, or is it
because less restrictive options are possible (most importantly, outside
inpatient services altogether)?
One final graph below in this graphtastic post – the
security level of inpatient services by the total continuous length of time
people have spent in inpatient services (including being transferred between
them). While this post so far has been about the claims to specialism of secure
inpatient services, this final graph speaks to the ‘assessment and treatment’
claims of non-secure ‘acute’ learning disability inpatient services. If that is
what these services do, why on earth are there 350 people in general (non-)secure
units (29.3% of people in general non-secure units) who have been in inpatient
services for 5 or more years? Why are there a further 405 people (33.9% of
people) who have been in general non-secure inpatient services for a year or
more? Or, to put it another way, why are nearly half of all people who have
been in inpatient services for 10 years or more (175 out of 370 people; 47.3%)
in general (non-)secure inpatient services, if they represent such a terrible
risk?
Overall, it really doesn’t look like the different parts of
the learning disability inpatient service complex are highly specialist and set
up to deal effectively with different groups of people with different problems.
Looks like we need assessment and treatment of the complex inpatient service
system itself – why is the challenging behaviour of this system so persistent?
A first start would be to ask what functions does this system serve, and for
whom? Cui bono?
"Is this because there aren’t enough medium/high secure inpatient services and they are desperately needed, or is it because less restrictive options are possible (most importantly, outside inpatient services altogether)?" yes and yes. There is a grave shortage of specialist and secure hospital beds in certain parts of the country (eg the south west) and therefore people are being sent for appropriate care and treatment many miles from their home area. Also, the closure of many local specialist hospitals after the Winterbourne scandals did not coincide with an increase in good community provision for people with highly complex needs and so again, more people have ended up in out of area hospitals, both secure and non-secure. stats and graphs produce a number of questions but rarely provide answers.
ReplyDeleteALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William, it does not have any side effect. I am glad to say that he has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com)
ReplyDeleteApparently intelligent data. However overstatement of security requirements directly associated with risk management. For example, LD client always considered low risk. One day he's bored and decides to leave the service via an upper window because he doesn't want to upset anyone by leaving via the front door. In fact his mate calls up because they're going to go to the fair and no one will know! So he jumps breaking an ankle. The service had prided itself with its reputation and quality. Getting over the affair was very difficult and the perceived risk management failures damaged a number of young promising careers. The team agreed via assessed capacity, best interest, then that security risks in future would be based as much on the possibility of risk events taking into account their LD and mental health presentation as much as the actual history in future so either deprivation of liberty (dols) or the mental health act applied depending on where they lived. Ten years later a new generation of bright young things demanded to know why the client was subject to a long standing legal restrictions on their rights and were appaled to be told that it was to 'protect' him... from what? The client confirmed that he wanted more freedom along with staff who confirmed this kind of thing to be common. The new bright young things had a new weapon that was sure to impress the curious reader, statistics.
ReplyDelete